Fundraising for new site

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JCreager
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Joined: Sun Nov 27, 2022 9:09 pm
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CLL Status: In Treatment
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Location: San Diego

Fundraising for new site

Post by JCreager »

Site participants, as you know, we have launched this new site due to the closure of the hosting platform of the current CLL Forum site. We have incurred some costs, and want to open up the opportunity for new site participants to donate money to the upkeep of the new site. Here are the costs that we have incurred to date, so that we can provide transparency:

Hosting at new site (for three years): $271 - this is at an introductory rate, and is expected to more than double after the first three years.
PayPal Transaction fees: Varies

If you would like to donate, please use the PayPal Donate button at the bottom of this page. If you would prefer to mail in a check, please send a private message to either drmoss_ca or JCreager.

Thanks
Jennifer and Chris
lovesbooks
Posts: 64
Joined: Tue Dec 13, 2022 6:50 pm
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Cancerversary: 20 Sep 2014
Location: Oregon

Re: Fundraising for new site

Post by lovesbooks »

Did it Jen. Hope others join in too. Thank you to you and Chris for all this work!

Happy New Year! :wave:
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JCreager
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Joined: Sun Nov 27, 2022 9:09 pm
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Location: San Diego

Re: Fundraising for new site

Post by JCreager »

Thanks so much!
Bookworm7127
Posts: 72
Joined: Mon Dec 12, 2022 3:07 am
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CLL Status: In Remission
Cancerversary: 10 Sep 2016
Location: Live in motorhome. Headed north to Ohio.
Contact:

Re: Fundraising for new site

Post by Bookworm7127 »

Done! One problem, I think, is that the Donate icon is a bit hard to find.
Unmutated, with no deletions.
Finished treatment w/ Gazyva & Ventoclax in Jan 2020.
Currently in remission
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JCreager
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Joined: Sun Nov 27, 2022 9:09 pm
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Location: San Diego

Re: Fundraising for new site

Post by JCreager »

Thank you! And thanks for the feedback, I'll play with the HTML a little more.
kcm1953
Posts: 21
Joined: Fri Jan 06, 2023 4:52 pm
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CLL Status: In Treatment
Cancerversary: 29 May 2015

Re: Fundraising for new site

Post by kcm1953 »

Well this explains why I had so much trouble finding site and logging in. I registered with new username and email and will definitely donate.

I was part of the BR treatment group back in 2015-2016. After 7 years without treatment, it is time for treatment. Looking at Acalabrutinib, Venetoclax and Obinituzimab, and a clinical trial.
Diagnosed with CLL/SLL 5/29/15.
Unmutated, del 13 and 11q
6 rounds BR treatment 7/15-11/15.
Started treatment with Acalabrutinib 2/9/23.
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JCreager
Site Admin
Posts: 154
Joined: Sun Nov 27, 2022 9:09 pm
I am a: Patient
CLL Status: In Treatment
Cancerversary: 15 Sep 2015
Location: San Diego

Re: Fundraising for new site

Post by JCreager »

Hi Ken, BR buddy! Welcome to the new forum! Good news is that there are lots of great treatments available, I should know, as I have had them all :-) Good luck and definitely message me with any questions you might have.
New_Foothill_Lynn
Posts: 28
Joined: Wed Dec 07, 2022 12:50 am
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CLL Status: In Remission
Cancerversary: 08 Aug 2007
Location: california and hawaii

Re: Fundraising for new site

Post by New_Foothill_Lynn »

Just donated as well. I'm thrilled to see this site up and running and, browsing through those registered, so happy to see old CLL friends. Many thanks to Chris and Jenn for all their work setting this up. Me ke aloha Lynn Samuels
13q- unmutated. Monosomy 7. In remission.
2017-2021: mono Venetoclax / 2015: 4 months Obinutuzumab / 2012-2013: NIH trial Ibrutinib.
Left trial dx with NSCLC. NIH surgeries 2012-1014 / 2015: SBRT for two small lung tumors
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drmoss_ca
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Cancerversary: 30 Jul 2014
Location: Nova Scotia

Re: Fundraising for new site

Post by drmoss_ca »

Thank you, Lynn!

C.
Diagnosed July 2014.
FCR x6 Oct 14 - Mar 15.
Relapse 2019, with new 17p13 deletion.
Started ibrutinib Dec 2019.
Transplant February 17th 2021.
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